Back in the hospital. We made that decision to make her comfortable and to stabilize so we can be home and stay home this time. Earlier, Lin had a few really good days at home, lots of energy, but then the glitch.
The glitch was violent vomiting all night a few days ago meant that something was keeping the food from being “processed”. X-ray showed no apparent blockage. To keep nausea at bay, the hated NG (Nasal Gastric) tube was put in as soon as we arrived in the hospital and has been doing its job keeping the stomach empty of bile, so no nausea, also pain pump is newly calibrated and doing its job well also.
Lin just had a drainage tube placed in her stomach. I am in the hospital room with her. She is resting right now, deeply, as she does after these operations. This one was more like a procedure, really, no going to sleep. The tube is designed to drain the bile and if it works, in 24 hours we can ditch the NG tube. So far so good. The nutritionist has decided to switch her diet to glucerna and I have asked for a meeting with her to learn all the reasons.
Great to get a night’s sleep in “mine own bed”. Thanks to Kadra and Spencer for covering last night and today. Amazing what sleep does to mood and resilience and I hope everyone who reads this is attempting to take care of self–here’s the checklist: good nutrition, sleep, exercise, social interaction with positive and loving people.
We are hopeful we will soon find a way to get nutrition moving consistently. Or that her body will find its own way. A “nice” BM yesterday had the nurse dancing a jig. I merely applauded. Hope is that the stomach will start “doing its job” to contract and push digested food through…so using Reglan (a drug that makes her all shaky/jittery, but no other resort now) to try to jumpstart. But if it doesn’t work, we have backup measures in place. Meanwhile she is not nauseous, pain is managed, she is resting.
Though this is difficult, and we really, really do not want to be here, we are appreciative of our couple time together, and marvel at the way the family is rallying ‘round and the deep and personal conversations we are having. And even a little fun, believe it or not.
Our good friends the Addicks, from Baltimore, are coming out next week to “run the household” for as long as we need. They provide a thread of stability and good cheer combined with realism and from time to time entertainment that is always most welcome. We hope for Lin to be able to come home by middle of next week.
We appreciate everyone’s kind thoughts and prayers.
Family volunteers are now scheduled to stay with her overnight, here and at home.
Lin continues to display class, dignity and concern for others above self. She is constantly making sure that I am eating properly, for example, as I do not have a feeding tube running into my body like she does.