As I suspected I would, today I was officially “booted out” of the clinical trial. My doctor said he had never seen anyone have such a severe reaction to the two “known” chemos that they were using. One gave me the rash from hell that I mentioned, and the other just kept knocking my blood counts so low that they couldn’t do the chemo. Not to mention that it didn’t appear to be working. The CT scan yesterday showed that the pancreatic tumor has not grown, but my liver involvement has increased. They gave me a shot of something called Nupigen (and I haven’t a clue if that is spelled correctly – most likely not!) that rebuilds the blood cells. If that works and the blood counts are high enough, Monday I start a new course of treatment where I go in and have a drip line installed, then go home and get dripped into for two days, then return again on Wednesday to get it taken out. This is done every two weeks, instead of every week, which will be nice! Unfortunately, the nasty side effect I am going to be dealing with is nausea. So they’re loading me up with all the high octane anti-nausea meds so I can be as comfortable as possible. I don’t get nauseated easily so I’m hoping that stands me in good stead. They will continue this course for four rounds – getting us right up to Christmas. Then he says I can have a two week break over Christmas so I will feel as well as possible during that time. The next CT scan is scheduled for the end of the four rounds.
Although my chemo schedule has changed, I will still plan on doing an update on Wednesdays, even if it’s just to say “everything is fine” or “I’m puking my guts out but otherwise everything is fine!” That way those of you who are following this will know when to check for a message.
Meanwhile, I have a gift of an extra day this week – usually chemo day is a “lost day” because it made me so sleepy I would just come home and sleep until the next morning (in addition to fighting a high fever all night due to my reaction to the “mystery” drug in the brew.) So I’ve had a nap and am feeling good and may just go out for a drive in this beautiful fall weather!